Schakowsky, Ocasio-Cortez and Over 20 Colleagues Send Letters to Potential Purchasers of 23andMe Holding Co. Asking for Data Privacy and Consumer Protection Commitments

WASHINGTON - Today, Representatives Jan Schakowsky (IL-09) and Alexandria Ocasio-Cortez (NY-14) led concerned colleagues in a letter to Leonard S. Schleifer, CEO of Regeneron Pharmaceuticals, and Anne Wojcicki, Founder of TTAM Research Institute, asking how their companies plan to protect consumers and their families if either of the two companies’ proposed bids to purchase 23andMe Holding Co. are successful.

The bankruptcy of 23andMe Holding Co. presents an unprecedented risk for more than 15 million consumers whose genetic data could be included in the sale. Previous breaches of 23andMe's genetic data have impacted over 7 million Americans and highlighted the privacy risks inherent in the collection of genetic data.

Regeneron Pharmaceuticals and TTAM Research Institute recently announced bids in the bankruptcy auction of 23andMe Holding Co. The concerned lawmakers are writing to obtain further information on how each company would plan to protect 23andMe’s genetic data. 

“We are seeking assurances that your company will adopt the broadest possible interpretation of previous policies and continue to put new safeguards in place,” wrote the lawmakers. “Genetic data, which 23andMe helped make accessible to millions of Americans, provides myriad benefits for medical research, genealogical research, and individuals and families seeking to understand their personal histories. However, genetic data is highly sensitive and its inclusion in a commercial bankruptcy proceeding presents enormous and unprecedented privacy risks for millions of consumers.”

At the end of the letters, the lawmakers posed 8 detailed questions that each clarify customer data privacy policies, and asked that Mr. Schleifer and Ms. Wojcicki provide written responses to the questions by no later than Thursday, June 26, 2025.

In addition to Reps. Schakowsky and Ocasio-Cortez, the letter to Regeneron Pharmaceuticals was signed by Reps. Yassamin Ansari (AZ-03), Brendan Boyle (PA-02), Shontel Brown (OH-11), Jasmine Crockett (TX-30), Debbie Dingell (MI-06), Maxwell Frost (FL-10), Jesús García (IL-04), Robert Garcia (CA-42), Jared Huffman (CA-02), Pramila Jayapal (WA-07), Ro Khanna (CA-17), Summer Lee (PA-12), Stephen Lynch (MA-08), James McGovern (MA-02), Kweisi Mfume (MD-07), Kevin Mullin (CA-15), Eleanor Norton (DC), Ayanna Pressley (MA-07), Rashida Tlaib (MI-12), Lori Trahan (MA-03), and Nydia Velázquez (NY-07).

The full text of the letter to Regeneron Pharmaceuticals can be found here.

The full text of the letter to TTAM Research Institute can be found here.

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